Sean hun I can relate to what ur saying, as I myself am disabled and have to be taken everywhere in a wheel chair, I have had this infliction since I was born but have learnt to live with it.
I was married for 24 years then got divorced but not because of my illness as at the time I wasn't as bad as I am now.
A year ago I met my new partner but I told him that I wouldn't get better and would gradually get worse, didn't expect it to be so soon though, well he has stuck by me and is great person to be with, also he is only 32 and i'm 50 so I felt as though I was tying him down but he told me he wanted to be with me no matter what came about.
sorry if i have rattled on as much but thought this might help in ur situation hun .
Any time u need to chat just call me hun xxxxxxxxxxxxxxxxxxx